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Thread: Cookie Bite HL plus brain injury? Need advice

  1. Default Cookie Bite HL plus brain injury? Need advice

    Hi everyone. I have been stalking posts, reading up and looking for info, trying to figure out whether to move forward with HAs. Little bit about me - I have long time mild-mod SNHL that started as reverse slope in childhood and is now a "cookie-bite" pattern that recently is either getting worse, or getting much harder to deal with. My mode of living is that some people I hear fine, others, not at all. If people face me, I rely on lip reading for a decent percentage of understanding, depending on how well people enunciate. I never watch TV, because I have to turn it up so loud other people can't bear it. But, other sounds are intolerable to me (usually high frequency sounds like alarms, etc...). I generally have volume turned up fully on things like phones, the radio, etc... in order to hear well. In addition to my daily job (tech engineer) I have my degrees in music and opera, so music quality and ability to continue function in music making environments is important.

    About two years ago I had a mild stroke which left me with some expressive and receptive aphasia and other cognitive challenges (ie. I get overwhelmed trying to do too much at once and seriously cannot tolerate loud environments like bars, sporting events, etc...). Since this happened, I am finding that my issues from the stroke, combined with my SNHL has made virtually everything more difficult, particularly working (I travel frequently; present at large meetings, conferences, work in a variety of environments). I find myself getting frustrated very easily and my ENT, neuro, and audi seem to think HAs may help.

    My questions are:

    1. Audi and ENT are telling my I should get HAs now, as my SNHL is genetic and progressive and if I wait much longer, I may find adjusting to HAs later down the line difficult to impossible to adjust to. They are saying the brain may ultimately just reject the sounds from the HAs and its better to get them now vs later. The skeptic in me wonders if this is accurate (are they trying to sell me HAs?); if so... what is the science behind this? Can anyone point me to articles, etc... or provide their own experiences?

    2. I am reading here that cookie bite HL is hard to work with for audis and HA fitting. My feeling (based on what Ive read here) is: I should look for open fit, bluetooth HAs, since I rely on my phone for work calls, etc... (right now I have to use a headset to hear anything). So I am considering ReSound Linx2s or Oticon OPN. But I am very nervous about paying a ton of money for them, then finding the audi has no idea how to work with CBHL, and discovering I hate the HAs. My current audi seems dismissive of the difficulty fitting cookie-bite, and evasive when I ask if she has fitted for this before. Any cookie biters out there have experience with either of these HAs? Any tips on finding a good audi? Pros/cons of the ReSound app vs Oticon app for self adjustments?

    3. Finally - I have posted my audiogram numbers in my signature. What do you guys think? Would HAs possibly help? Or is it still mild enough that HAs would make things worse not better. Very confused as to what to think at this point.

    Sorry for the long post... and many thanks for any help you all can provide.
    Last edited by khinman7; 10-15-2016 at 10:55 AM.
    Freq - 250 - 500 - 750 - 1k - 2k - 3k - 4k - 6k - 8k
    -- R -- 25 -- 35 -- 50 - 50 - 30 - 25 - 20 - 15 - 30
    -- L -- 25 -- 40 -- 50 - 50 - 35 - 20 - 15 - 10 - 20

    SRT R 40 L 40
    WR R 80/88% L 80/88%

  2. #2

    Default

    If you are anywhere near a Costco dont cost nothin to test drive.. brios and ks7

  3. Default

    1. Accurate. Here's a simplification but: Lack of stimulation to the auditory nerve results in upstream changes in the auditory cortex. For example, when the area of the auditory cortex that listens to pitch B isn't getting any signal, they neurons from neighbouring pitches A and C start to invade that area. There's been some neat research in cats showing that when you return pitch B, that area of the cortex strengthens up again, but never really returns to its original organization. Better to prevent the cortical re-organization than to try to fix it later.
    Annecdotally, a family member of mine has been living with unamplified hearing loss for the last 25 years. At this point, she can't handle the "noise" that hearing aids make for her. Regular noises like the doors closing or footsteps.

    2. All modern hearing aids have bluetooth streaming at multiple technology levels (except for Oticon Opn, which is currently only available at premium levels). What makes current Resound and Oticon aids (and Starkey and very soon Widex) different is that they don't need you to wear a middle man between the hearing aids and the phone for music streaming, etc. But you'll probably want a middle man anyway to pick up your voice and send it back to the caller if you are actually talking on the phone, if you want hands-free.

    3. If you are starting to struggle, then it's time to go ahead with hearing aids. Make sure you know what return policies and trial periods are, and understand that it might take a lot of time upfront to find a fitting that works for you. Then don't be afraid to dive in--you can always return them!

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